SATB2 Resources

Very simply put, there are not many resources available right now for information. We do have a phenomenal geneticist who is researching SATB2 Associated Syndrome (our parent group lovingly refers to him as Dr. Z), and he recently put together an awesome website, and it is my new favorite!!! SATB2 Gene

I love this shirt- I CAN. I WILL.

As parents of kids with SATB2 Associate Syndrome, we have an amazing support group on Facebook, and if you are a parent of an SATB2 child, we would love to have new members! We enjoy each and every story!

If you are not a parent, we do appreciate the support, but there are some things we would rather only share with other parents who have the same daily struggles.
SATB2 Syndrome Facebook Group

There is also a group: Unique Understanding Chromosome Disorders. They have a brief, 2 page article about SATB2 Syndrome:

SATB2 Syndrome

And a much more in-depth article (28 pages) on a 2q33.1 deletion, which encompasses the majority of SATB2 kids:

2q33.1 Deletion