Morning Routine

A trap that is all too easy to fall into is doing things FOR our special needs kids that they can do themselves. Yes, it may take extensive training and supports, but they CAN eventually get it!

My goal is to not have to do these things for Chelsea when she is older. Who wants to be dressing their 25 year old child when nothing is wrong with their hands? I sure don't!

Therefore, we developed a morning routine so that Chelsea can get used to caring for herself!

1. Go potty! This means wiping correctly, washing hands, remembering to flush, everything!

2. Make bed. In order to get breakfast, you need to do work. Right now, this means putting on a blanket and arranging stuffed animals.

3. Eat breakfast. Focus on manners- eating correctly and not making too big of a mess.

4. Get dressed. All by herself! Underwear put on the right way, socks pulled on, shirt on correctly, everything! It takes a looooong time, but I know it will be worth it in the end!

5. Laundry in hamper. She understands she needs to clean up after herself.

6. Brush teeth. This will be HUGE, since Chelsea's genetic syndrome involves serious dental problems. She needs to know how to take care of herself!

7. Wash face and hands. Chelsea's school is amazing at helping reinforce this during her school hours, so she has made great progress on washing her hands!

8. Glasses and medicine. I have Chelsea try to put on her glasses, and push in the plunger on her medicine syringe to have her accountable for the medicine.

9. Brush/ do hair. Still in the very early stages, but definitely something we want to work on for the long-term!

10. Pack lunch/ backpack. This is one thing that I really am pushing with Chelsea. She eats her food better when she feels responsible for it, and I want her to be able to take care of herself- make sandwiches if she is hungry, or think ahead to pack a lunch for a picnic. Plus, it makes her so happy!

School Lunches

Before starting this lunch packing method, I always ended up feeling rushed, stressed, and frustrated in the mornings. I often view myself as a lazy mom- I like sleeping in as much as possible in the mornings, so I prep things ahead of time to allow myself extra snooze time!

1. Grocery shop- I tend to pick 3 vegetables and 3 fruits that will be the options for school/ work lunches that week, 100% juice boxes, and some protein ingredients. I also let the kids pick out a gross, cheap, sugar-packed dessert that makes them happy.

2. Stock up on disposable containers! This means sandwich and snack size Ziploc bags, and the mini containers (I call the super tiny ones hummus cups and slightly larger ones berry cups)

3. Set aside some time! For me, I stay up really late on Saturday or Sunday night, and watch my favorite shows- Big Bang Theory and Speechless, on the internet while I do all the following prep!

4. Chop and bag veggies!!! I will pick a couple veggies- carrots and red peppers being the kids' favorites here, and put kid portions into little snack baggies. Super quick and easy (especially when I just have to count out 8ish baby carrots per bag!)

5. Put dips into containers! This is always hummus or ranch for us. This is the fastest step, and it gives me immense satisfaction to see 10-15 little containers all lined up and filled. I feel so productive!

6. Slice and bag fruits! This and the protein snacks are the ones that take longest, depending on the fruit. Blackberries or grapes? Easy. Watermelon pops or fruit kabobs? Less easy and more time intensive.

7. Make protein snacks! This could be turkey/ veggie cream cheese rollups, deviled eggs, cheese cubes, or baggies of nuts. Whatever your kids like best!

8. Prep dry snacks. Pop popcorn and bag it up, or get those super yummy veggie chips/ straws! I will let the kids pack these plus another fruit/ veggie for their snacks at school. I put all these bags onto a big bowl.

9. Make notes! My kids LOVE getting cute notes or jokes in their lunches, but I hate writing them in the mornings, so I write mass notes and look up jokes, then keep them in a bowl by the napkins and disposable spoons and stuff. Whatever gets the job done, right?

Bonus step: Have a cheap pack of stickers and stick them all over everything. 99 cents worth of stickers and the kids have 2 weeks of Finding Dory lunches!

10. Pack everything into fridge. I have a shelf dedicated for just lunches/ school snacks. It has the veggies, dips, fruit, protein snacks, juice boxes, and desserts.

11. Breathe easier!!! Spending an hour to an hour and a half once a week (while watching a couple shows) is WAY easier to me than 25 minutes every morning. I must be the slowest lunch packer ever when I don't pre-prep!!!

Now, I make a quick sandwich, and throw in a fruit bag, veggie and dip, protein, juice, and dessert for lunch. Fruit plus dry baggie for snack, and that add up to 5 minutes, then we have lunch for everyone!!!!

Gaston Party

My son is OBSESSED with Gaston from the Beauty and the Beast movie! He is convinced that Gaston is the strongest guy ever, and wants to be strong too. So we did a Gaston themed party for his 4th birthday! He even had a Gaston costume!

The invitations were fun, I loved the "It's Your Lucky Day!" introduction!

For decorations, we did red/ yellow balloons and streamers, and had a Gaston plush doll that my little guy got for Christmas, and a play Beauty and the Beast action figure set out.

My super crafty mom also made paper deer head antlers, as you can see behind mini-Gaston here, who decided it was his party, and he would cry if he wanted to.

We did Gaston coloring books! I just looked up "Beauty and the Beast Gaston coloring page" on google, and put in 5 black/ white pictures of Gaston. The most popular picture was one of Gaston when he fell in the mud! On the front of each book, I put "My Gaston Coloring Book" with the name of each child to reduce fighting over whose was whose.

We played Kill the Beast while that song played in the background (we had the Broadway soundtrack playing the whole party). I had the kids shoot a picture of the Beast (We used a silly one of him slipping on ice) with a bow and arrow. It was VERY popular!

We did a Gaston Face Cut-Out, and had the kids take pictures with the Gaston, or as Gaston. That was super fun, and was for sure the thing that took the most time to prepare, since we had to blow up an image, trace it, then color/ paint it!

You can barely see the pencil outline

Me with the sharpie-colored Gaston

Then painted after hours of work!

We also played Ring Toss with inflatable antlers because Gaston uses "antlers in all of [his] decorating". This came from our Christmas bin, but the kids didn't care. Antlers are antlers.

For the food, we had 4 dozen deviled eggs (obviously!), and had chicken drumsticks, and a Gaston cake! Instead of ice cream, we did root beer floats. I considered using mugs, but decided that might give a bad impression to little 4 year olds...

Of course my son wanted to eat Gaston's face...

We did a parachute, which was super fun and not related to Gaston, but the kids LOVED it! We lots of different games, made a tent, kicked it while the adults shook it, jumped in the middle when your name is called...

The parents and kids said that it was a super fun party, and my mini-Gaston said it was the best day of his life, so I guess it was a win!

Best Therapy Toys

Ask any special needs parent, and every Christmas/ birthday revolves around the question, "What is the best toy I can get for my child that can also double as therapy helps?"

Here are the toys that I have loved most of all that help lots with Chelsea's progress:

1. SENSORY/ GROSS MOTOR TOYS

Usually I take Chelsea to the park almost every day, but on days when I am feeling sick, or when there is inclement weather, we pull out gross motor toys! Indoor trampoline, squeaky hopper, hoppy ball, teeter popper, and sensory tunnel.

Her favorite is the sensory tunnel! I got instructions for that here. I'm no seamstress, so I swapped my friend making it for a carrot cake, which I am good at making! Barter is the best!

2. CHARACTERS

Whatever your kid is into- get some little action figures of! Dinosaurs, ninja turtles, sesame street, whatever! Chelsea LOVES her princess castle and plays with it just about every single day! Super good for imagination and role playing (Have the princesses bake cookies/ go to the park/ get on the bus)

When we do therapy, we use the princesses very often (for speech, say "Tiana go potty" or "Belle go up"), and their names were the first words she learned how to read!

3. BOOKS!

All sorts of books here- easy picture books (Gerald and Piggie, Dr. Seuss, etc), lengthier fairy tales, early readers, anything! Just read, read, read 30+ minutes a day!

4. SENSORY BINS

We have several sensory bins, but the favorite is the kinetic sand! We use little digging tools, shovels, pails, and I make the kids use it on the porch, because it gets EVERYWHERE!!!

We have also used dry rice, beans, and water. I really want to make a water beads one, but it is still a work in progress. Word of warning though- DO NOT use sticky foam beads!!! They are the devil and will make you want to die after one use! They get EVERYWHERE and are impossible to clean! 

But it is so fun to mix in things- toys, sight words, magnetic things, items for a theme... And then use those things to do speech "Wow, a ____" or "Look at this!"  

5. BUILDING MATERIALS

Cardboard blocks, magnetic tiles, Legos, Lincoln logs, generic wooden blocks, railroad tracks... The big-time winner at our house is the magnetic tiles. Pricey, but WOW I have never seen Chelsea so engaged in building things before!

Since the tiles are magnetic, they snap together pretty easily, and that makes Chelsea feel VERY successful and then she is willing to continue! She and her brother share them, which is another huge bonus!

Cardboard blocks!

6. BUSY BAGS

When we go out, it is always nice to have an activity/ toy that is easily transportable and educational, so I made a bunch of busy bags! I made my first batch over the summer, and the second batch in the fall. I keep them in a box and just grab a few to toss in the kids' backpacks on the way out the door.

Teaching Reading

I had been working on Chelsea-chosen words for reading, but then decided to try some of the Kindergarten sight words. So, being the obsessive list-maker that I am, I made a plan- to teach Chelsea 25 new sight words every two months. It is a challenging, but still reasonable, goal for her. We work 10-20 minutes a day of strictly learning/ reviewing sight words.

The words I started with are:

• See
• Me
• So
• Do
• To
• Am
• It
• At
• He

• The
• Up
• You
• On
• Like
• I
• No
• Can
• We
• A
• Go
• An
• My
• In
• Is
• And

Most of these words have little to no meaning for Chelsea, so I made up sentences for her to read, using the words she already learned that are motivating for her combined with new sight words:

1. Ariel is a girl like me

2. I like Cinderella

3. Mommy and Daddy like me

4. Tiana and Ariel are my friends

5. You are so nice

6. We go up the stairs

7. Do you see Snow White?

8. Sleeping Beauty is on my bed

9. I like Jasmine and Belle

10. I can go see Rapunzel

11. I can go to Grandma's house

12. I see an animal

13. Dopey is a dwarf

14. I can do anything

15. Can Chelsea do it?

16. He is on the table. No! No!

17. Gaston is in my house

18. I am at Grandma's house

The other thing I do is send little notes in Chelsea's lunchbox/ snack bag. They aren't ever very long, but use words to help her practice her reading, and her aide/ teacher helps her read them. They would say things like:

1. I like you! I love you! You are a happy girl

2. Do you like your blue dress? I like your blue dress! (and have the blue dress drawn under)

3. Chelsea is a girl! Chelsea is a nice girl! Mommy loves Chelsea

What I Love About SATB2

With Valentine's Day just around the corner, I thought about some of the things that I love about Chelsea, and how I can show her that I love her.

1. I LOVE that she is such a sweet, happy girl! SATB2 kids seem to be some of the most cheerful, content babies. I figure if she can be happy even with the frustration that must come from not being able to communicate, I can be happy when I am around her.

2. We have gained a very close group of friends! Even if we don't speak the same language (THANK YOU, google translate!), or live in the same country, we all love our SATB2 kids, and chat daily about their triumphs and struggles. Chelsea has much more support out there now, and I will spread the word so that other kids get that same opportunity!

3. Chelsea NEVER gives up! You would think she would, since everything is SO difficult for her, but instead she just doggedly keeps on persevering! If she won't give up, neither will I, so if I need to take a sign language class, or attend a special needs law workshop, or do therapy at home, Chelsea is worth it!

4. She makes every accomplishment seem like a mountain conquered! I have gained such incredible perspective! I remember during potty training (after about 7 months!), she would pull down her underwear, then poop on the floor, then pick it up (*gag*), put it in the potty, and then come show me her hands. For her, that is a MASSIVE accomplishment- realizing that she shouldn't go in her underwear! You never know how big a step is until you have seen the bottom! I will cheer her on every step of the way!