SATB2 Quirks

Most people learn pretty quick about the big parts of the SATB2 diagnosis. The cleft or high palate, absent or limited speech, intellectual impairment, behavior and bone disorders, dental issues, all that. (That is a lot of big topics, by the way!)

Here are a few things that are very common for SATB2 kids that aren't as big of news, but still cool that they have in common:

Fast Growing/ Curly Toenails

Oh my goodness, can toenails grow any faster? And they usually curl down, so are hard to trim, especially that crazy 4th toe! Weird! Chelsea doesn't like getting her nails trimmed ever, so I usually bribe her with nail polish every time I trim a nail.

Huge Appetites

These kids can EAT! Chelsea eats just about anything I put in front of her! Not picky at all! I remember one time Chelsea ate 3 POUNDS of grapes in a single sitting. It is like having a teenage boy who is starving and also works out all day living in my house. 

Super Skinny

You would think with those huge appetites, these kids would be huge! But no, they are SO skinny! (with a few exceptions of some G tube cuties) I can count all Chelsea's ribs, and her pants are constantly slipping down- that girl has no bum to hold them up!

Drooling

Lots and lots of drool! Sometimes it stops around 3-4 years old, and sometimes it continues all the way into adulthood. Crazy!

Tongues

As babies, these kids would stick out their tongues all the time, trying to lick everything and are EXCELLENT at rejecting solid foods when first introduced!

Infectious Smiles

A word of caution- these kids have some of the cutest, brightest, most adorable smiles ever!!! We parents get compliments all the time on those radiant grins, which often have teeth missing!

Sleep? What is sleep?

Lots of these kids don't sleep well alone. Or at all, really. You think normal parents don't get sleep? Imagine a 14 year old climbing into bed with you every night! 

Friendliness

These kids are super sweet and friendly most of the time. It usually scares typical people to be approached and hugged. Okay, it scares them with it is an older child or adult. When it is a toddler, it is adorable. But there is usually lots of waving and blowing kisses and hugging. With total strangers.


Lazy Eye

A bunch of these SATB2 kids will have an eye that randomly drifts off and looks a different direction. Many people normally do, but the difference is that it is harder to fix with a SATB2 kid, since they can't tell an eye doctor exactly what is wrong. 

Growling

Lots and lots of these kids will growl when excited, or upset, or just as a sensory input. Chelsea used to growl at everyone when she was a baby, and still does sometimes! We try to tell her that princesses don't growl, they talk or sing. But it doesn't always work.

Chuckling Laugh
Every time SATB2 kids meet up, one of the most common things said is, "They laugh EXACTLY the same!!!"

High Pain Tolerance

When Chelsea was 2, she fell off a swing and broke her collarbone, and didn't even cry! I didn't know she had a broken bone until she stopped using her arm the next day and I took her to the doctor. Come to find out- pain is a good thing to have! It lets you know what your body needs!

They Eat Anything

Literally anything. I was forever picking weird things out of Chelsea's mouth- pebbles, orange and banana peels, fuzz from sweaters, lots of things!