Sunday, August 12, 2018

SATB2 Awareness Day

August 22nd is coming up, and do you know what that means??? SATB2-ASSOCIATED SYNDROME AWARENESS DAY!!!!! Woohoo!!!!


Not everyone has a lot of time, so here are some ideas for those of us who are strapped for time with the start of school and everything:

1. Take a picture of you holding up 2 fingers to represent the 2nd chromosome and post it on social media with a #ShowYourSAS hashtag!


2. Post a picture of your favorite SATB2 superstar and use the hashtag #showyourSAS (or) #mySATB2kid. Take a selfie with one of the four selfie signs and tag the SATB2 Gene Foundation. Don't forget to use #MySATB2Kid or #ShowYourSAS. Download your selfie sign today


3. Change your facebook profile to use the SATB2-Associated Syndrome awareness day border


4. Go to the SATB2 Gene Foundation website HERE to learn more about SATB2-Associated Syndrome! 


5. Join the SATB2 Gene Foundation facebook page HERE. The stellar mom who founded the organization posts cute pictures of SATB2 kids, great stories, and ways to get involved with the foundation!


For those people who want to get more ambitious, here are some other ideas of what to do!

6. Go HERE to download a fantastic information flyer about SATB2-Associated Syndrome, and distribute it to your pediatrician, school, dentist, or anyone else that is awesome and wants to learn about our superstar kids! Don't copy the picture! The download (totally free, don't worry!) is great quality and amazing!


7. Donate to the SATB2 Gene Foundation or host a fundraiser! Play to your strengths! I work part-time at a gymnastics gym, and asked them to host an open gym night with proceeds going to the foundation! Another family wanted to do a casino night, and others have done raffles. 

Families can create online fundraisers through Facebook, or explore other options like bake sales in their local community

8
. Write a letter to the editor of your newspaper talking about SATB2-Associated Syndrome. It just may get published!


9. Do a presentation at your child's school/ daycare facility! Or if your other children want to present to their class, it is a wonderful way for them to get involved in a great cause and raise awareness at the same time!


10. Try out a disability! I loved THIS idea about a person who put on a disability awareness activity, and had people "try out" different disabilities. I have attended one of those before and it was very eye-opening!




BONUS: Write a letter to a parent of a SATB2 child expressing your support. Raising a child with a disability is so unbelievably hard! It is difficult financially, emotionally, martially, physically, and affects every aspect of your life! These parents need to know that they have a village out there!

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